So you have pain with sex, or you leak urine when you sneeze, or you feel a bulge in your vagina, or you have chronic constipation or any other “down there” health concern. Where do you begin? Having suffered from pelvic pain and an assortment of related health issues for years, these are my suggestions for finding the right provider, getting the help you need, and speaking candidly about tough issues.Read More
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I opened the driver door and was confronted with a wave of judgment and anger. The man yelled at me: “can’t you see we are still getting into our car? You’re not even disabled! You shouldn’t even be parking there!” I flushed with embarrassment and became shaky. And for the first time in my life, I yelled at someone in public. “You have no idea what you’re talking about. You know nothing about me!”Read More
Sex after pelvic pain is f*#&ing scary (no pun intended). Nevertheless, I somehow DID find the courage to hop back in the sack, and I’m really glad that I did. This time, it didn’t feel like my PT’s voice was in my head the whole time, narrating where my knee should go, whether my pillow was at the right height, and whether I should reapply my Lidocaine.Read More
This treatment, and these PTs, weren't going to be the ones to get me better. This was true despite how badly they wanted to help me and despite how compliant I had been with their treatments. It was true despite how passionately they felt about pelvic floor disorders, how much book knowledge and certificates about my issues they possessed, and how personally involved with my case they felt. These women genuinely, deeply cared for me.Read More
My physical therapist, Sandy, has asked me: "How many good things, feelings, and inputs is it going to take for you to no longer fear that the pain will return?" My answer has always been: "I don't know." She also admits to not knowing. No one knows.Read More
More times than I can count, I’ve been asked: “How long did it take for you to start feeling better?” I met Sandy, my PT, when I was wheelchair-bound and in constant, horrific pain. So, I’m sharing this journal entry, written 15 days after meeting Sandy. And to answer the question: It took less than 15 days.Read More